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PA Bulletin, Doc. No. 17-1307

NOTICES

DEPARTMENT OF HEALTH

Newborn Screening and Follow-Up Technical Advisory Board Meeting

[47 Pa.B. 4595]
[Saturday, August 5, 2017]

 The Newborn Screening and Follow-Up Technical Advisory Board, established under the Newborn Child Testing Act (35 P.S. §§ 621—625), will hold a public meeting on Thursday, August 24, 2017, from 10 a.m. until 3 p.m. The meeting will be held at the Department of Transportation, Materials and Testing Laboratory, DGS Annex Complex, 81 Lab Lane, Harrisburg, PA 17110-2543. The agenda will include an update from the Bureau of Family Health on: data collected in connection with screening for lysosomal storage disorders, severe combined immunodeficiency and cystic fibrosis; NewSTEPs 360, the grant received to improve the timeliness of newborn screen; the implementation of the Natus Case Management System; and recent cytomegalovirus subcommittee activities. The agenda also will include: a discussion of the proper plan of care in the event of detection of pseudodeficiency genes; treatment center grants; proposed legislation (HB 1081) that would affect newborn screening; and an update on the R4S pilot which is the use of the laboratory performance database. The subcommittees will provide updates.

 For additional information or for persons with a disability who wish to attend the meeting and require auxiliary aid, service or other accommodation to do so, contact Stacey Gustin, Public Health Program Manager, Division of Newborn Screening and Genetics, (717) 783-8143. Speech and/or hearing impaired persons use V/TT (717) 783-6514 or the Pennsylvania AT&T Relay Service at (800) 654-5984 (TT).

RACHEL L. LEVINE, MD, 
Acting Secretary

[Pa.B. Doc. No. 17-1307. Filed for public inspection August 4, 2017, 9:00 a.m.]


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