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PA Bulletin, Doc. No. 19-1592

NOTICES

DEPARTMENT OF HEALTH

Newborn Screening and Follow-Up Technical Advisory Board Meeting

[49 Pa.B. 6448]
[Saturday, October 26, 2019]

 The Newborn Screening and Follow-Up Technical Advisory Board, established under the Newborn Child Testing Act (35 P.S. §§ 621—625), will hold a public meeting on Tuesday, November 19, 2019, from 10 a.m. to 3 p.m. The meeting will be held on the upper level of Giant Food Store, 3301 Trindle Road, Camp Hill, PA 17011.

 The agenda will include a discussion on the challenges of newborn screening home birth and follow-up led by Patricia Lee, CNM, president and CEO of Nurse Midwifery Care, PC, Reinholds, PA. In addition, the agenda will include a discussion on future considerations regarding the structure and funding distribution for treatment center agreements, updates from the Bureau of Family Health (Bureau) and updates from the Lysosomal Storage Disorders/X-ALD, Cystic Fibrosis, Ethics and Critical Congenital Heart Defects subcommittees. The Bureau will provide data for each subcommittee update and for severe combined immunodeficiency disorder.

 For additional information or for persons with a disability who wish to attend the meeting and require an auxiliary aid, service or other accommodation to do so, contact Stacey Gustin, Acting Director, Division of Newborn Screening and Genetics, (717) 783-8143, or for speech and/or hearing impaired persons, call the Pennsylvania AT&T Relay Service at (800) 654-5984 (TDD users) or (800) 654-5988 (voice users).

RACHEL L. LEVINE, MD, 
Secretary

[Pa.B. Doc. No. 19-1592. Filed for public inspection October 25, 2019, 9:00 a.m.]


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